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Families including someone with mental illness can experience deep despair. They need support

<div class="theconversation-article-body"> <a href="https://theconversation.com/profiles/amanda-cole-1484502">Amanda Cole</a>, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a> In the aftermath of the <a href="https://theconversation.com/bondi-attacker-had-mental-health-issues-but-most-people-with-mental-illness-arent-violent-227868">tragic Bondi knife attack</a>, Joel Cauchi’s parents have <a href="https://www.theguardian.com/australia-news/video/2024/apr/15/bondi-junction-stabbings-joel-cauchis-father-extremely-sorry-for-victims-video">spoken</a> about their son’s long history of mental illness, having been diagnosed with schizophrenia at age 17. They said they were “devastated and horrified” by their son’s actions. “To you he’s a monster,” said his father. “But to me he was a very sick boy.” Globally, one out of every eight people <a href="https://www.who.int/news-room/fact-sheets/detail/mental-disorders">report a mental illness</a>. In Australia, <a href="https://www.aihw.gov.au/reports/mental-health-services/mental-health">one in five people experience a mental illness</a> in their lifetime. Mental illness and distress affects not only the person living with the condition, but <a href="https://www.aihw.gov.au/reports/australias-health/chronic-conditions-and-multimorbidity">family members and communities</a>. As the prevalence of mental health problems grows, the flow-on effect to family members, including caregivers, and the impact on families as a unit, is also rising. While every family is different, the words of the Cauchis draw attention to how families can experience distress, stress, fear, powerlessness, and still love, despite the challenges and trauma. How can they help a loved one? And who can they turn to for support? <h2>The role of caregivers</h2> Informal caregivers help others <a href="https://www.aihw.gov.au/reports/australias-welfare/informal-carers">within the context of an existing relationship</a>, such as a family member. The care they provide goes beyond the usual expectations or demands of such relationships. Around <a href="https://www.aihw.gov.au/reports/australias-welfare/informal-carers">2.7 million Australians</a> provide informal care. For almost a third of these the person’s primary medical diagnosis is psychological or psychiatric. It has <a href="https://journals.sagepub.com/doi/10.1177/1074840708323598">long been acknowledged</a> that those supporting a family member with ongoing mental illness need support themselves. In the 1980s, interest grew in caregiving dynamics within families of people grappling with mental health issues. Subsequent research recognised <a href="http://www.aihw.gov.au/chronic-diseases/">chronic health conditions</a> not only affect the quality of life and wellbeing of the people experiencing them, but also impose burdens that reverberate within relationships, caregiving roles, and family dynamics over time. Past studies have shown families of those diagnosed with chronic mental illness are increasingly forced to <a href="https://pubmed.ncbi.nlm.nih.gov/24943714/">manage their own depression</a>, experience elevated levels of <a href="https://pubmed.ncbi.nlm.nih.gov/23692348/">emotional stress</a>, negative states of mind and <a href="https://pubmed.ncbi.nlm.nih.gov/21165597/">decreased overall mental health</a>. Conditions such as depression, anxiety disorders, bipolar disorder, and schizophrenia can severely impact daily functioning, relationships, and <a href="https://pubmed.ncbi.nlm.nih.gov/36875411/">overall quality of life</a>. Living with mental illness is often accompanied by a myriad of challenges. From stigma and discrimination to difficulty accessing adequate health care and support services. Patients and their families navigate a complex and often isolating journey. <h2>The family is a system</h2> The concept of <a href="http://apps.who.int/iris/bitstream/10665/40336/1/16937_eng.pdf">family health</a> acknowledges the physical and psychological wellbeing of a person is significantly affected by the family. Amid these challenges, <a href="https://www.frontiersin.org/journals/psychology/articles/10.3389/fpsyg.2024.1330720/full">family support</a> emerges as a beacon of hope. Research consistently demonstrates strong familial relationships and support systems play a pivotal role in mitigating the adverse effects of mental illness. Families provide emotional support, practical assistance, and a sense of belonging that are vital for people struggling with mental illness. My recent <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">research</a> highlights the profound impact of mental illness on family dynamics, emphasising the resilience and endurance shown by participants. Families struggling with mental illness often experience heightened emotional fluctuations, with extreme highs and lows. The enduring nature of family caregiving entails both stress and adaptation over an extended period. Stress associated with caregiving and the demands on personal resources and coping mechanisms builds and builds. Yet families I’ve <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">interviewed</a> find ways to live “a good life”. They prepare for the peaks and troughs, and show endurance and persistence. They make space for mental illness in their daily lives, describing how it spurs adaptation, acceptance and inner strength within the family unit. When treating a person with mental illness, health practitioners need to consider the entire family’s needs and engage with family members. By fostering open and early dialogue and providing comprehensive support, health-care professionals can empower families to navigate the complexities of mental illness while fostering resilience and hope for the future. Family members <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">express stories</a> of an inner struggle, isolation and exhaustion. <h2>Shifting the focus</h2> There is a pressing need for a shift in research priorities, from illness-centered perspectives to a <a href="https://shop.elsevier.com/books/child-youth-and-family-health-strengthening-communities/barnes/978-0-7295-4155-8">strengths-based focus</a> when considering families “managing” mental illness. There is transformative potential in harnessing strengths to respond to challenges posed by mental illnesses, while also <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">supporting family members</a>. For people facing mental health challenges, having <a href="https://www.sane.org/information-and-resources/facts-and-guides/families-friends-carers">loved ones who listen without judgement</a> and offer empathy can alleviate feelings of despair. Beyond emotional support, families often serve as crucial caregivers, assisting with <a href="https://www.blackdoginstitute.org.au/emergency-help/helping-someone-else/">daily tasks, medication management and navigating the health-care system</a>. As the Cauchi family so painfully articulated, providing support for a family member with mental illness is intensely challenging. Research <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4804270/">shows</a> caregiver burnout, financial strain and strained relationships are common. Health-care professionals should prioritise support for family members at an early stage. In Australia, there are various support options available for families living with mental illness. <a href="https://www.carergateway.gov.au/?utm_source=google&utm_medium=paid-search&utm_campaign=10626744435&utm_adgroup=102994881737&utm_term=carer%20gateway%20wa&gad_source=1&gclid=EAIaIQobChMIt8T6pJzIhQMVjAyDAx2KiQl1EAAYASAAEgLj-fD_BwE">Carer Gateway</a> provides information, support and access to services. <a href="https://www.headspace.com/?utm_source=google&utm_medium=search&utm_campaign=HS_Headspace_Brand-Exact_Search_AU-INT_Google_NA&utm_content=&utm_term=headspace&gad_source=1&gclid=EAIaIQobChMI4uKKvpzIhQMVFheDAx1bZgk8EAAYASAAEgLy6vD_BwE">Headspace</a> offers mental health services and supports to young people and their families. Beyond these national services, GPs, nurses, nurse practitioners and local community health centres are key to early conversations. Mental health clinics and hospitals often target family involvement in treatment plans. While Australia has made strides in recognising the importance of family support, challenges persist. Access to services can vary based on geographic location and demand, leaving some families under-served or facing long wait times. And the level of funding and resources allocated to family-oriented mental health support often does not align with the demand or complexity of need. In the realm of mental illness, family support serves as a lifeline for people navigating the complexities of their conditions. <hr /> If this article has raised issues for you, or if you’re concerned about someone you know, call <a href="https://www.lifeline.org.au/">Lifeline</a> on 13 11 14.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/228007/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/amanda-cole-1484502">Amanda Cole</a>, Lead, Mental Health, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/families-including-someone-with-mental-illness-can-experience-deep-despair-they-need-support-228007">original article</a>. </div>

Caring

Outpouring of support for baby girl after Bondi tragedy

The heart-wrenching events that unfolded during Saturday's Bondi massacre shook not just Sydney, but all of Australia. Amid the sorrow and shock, however, there emerged a glimmer of hope and solidarity as Australians united to support the victims, particularly a nine-month-old baby girl named Harriet, who became a symbol of resilience in the face of tragedy. Harriet, the daughter of Ashlee Good, tragically lost her mother in the Bondi Westfield shopping centre attack perpetrated by Joel Cauchi. Ashlee, described by friends and family as a radiant presence, lost her life while heroically protecting her beloved daughter from the assailant's violence. The infant, Harriet, sustained stab wounds and was rushed to Sydney Children’s Hospital in critical condition. Thankfully, she has since been stabilised and moved out of ICU, but remains under close medical care. In response to this harrowing ordeal, the Australian community swiftly rallied together, demonstrating an outpouring of compassion and generosity. Within a mere three days, a <a href="https://www.gofundme.com/f/Ash-Good" target="_blank" rel="noopener">GoFundMe campaign</a> surpassed its initial goal of $100,000 by raising over $535,000 for Harriet's support. The fundraiser, initiated to alleviate the financial burdens faced by Harriet and her father, Dan, garnered support from both loved ones and strangers alike, reflecting the nation's collective grief and determination to provide solace in any way possible. The sentiments expressed within the fundraiser encapsulated the profound loss felt by those who knew Ashlee and the unwavering commitment she had to her family. "Our hearts were broken beyond comprehension as we learned of the tragic loss of our beautiful friend, Ash, in the stabbing attack at Westfield Bondi Junction on Saturday afternoon," it reads. "Ash was a ray of sunshine and positivity in every aspect of her life and died a hero saving her little girl from the most unspeakable evil. "We have been overwhelmed by requests from loved ones and strangers wanting to support Dan and Harriet as they face life without their beloved Ash. Being a mother to baby Harriet and partner to Dan was Ash’s whole life. Her love and commitment to them was evident to all who knew her. We are united in our devastation that her bright future was cut short in this way. Her beautiful and warm spirit, drive and energy inspired us all." Ashlee's radiant spirit, her boundless love for her daughter and partner, and her selfless act of sacrifice resonated deeply with all who encountered her. The profound impact of the Bondi massacre extended beyond the immediate victims, as the entire nation mourned the loss of innocent lives and grappled with the senseless violence that shattered a community. The victims, including Yixuan Cheng, Pikria Darchia, Dawn Singleton, Faraz Tahir, Jade Young, and Ashlee Good, were remembered not just as statistics but as individuals whose lives were tragically cut short. The makeshift memorial at Bondi Junction served as a powerful symbol of remembrance and solidarity, adorned with an abundance of flowers and heartfelt messages from those touched by the tragedy. Friends and family of Ashlee Good gathered at the memorial, finding solace in the outpouring of support from their community. As the healing process begins, the ongoing support for Harriet and her family serves as a testament to the strength of community bonds and unwavering compassion. Images: Nine News

Caring

Cricket legend Greg Chappell's dire situation sparks rally of support

Australian cricket has seen its fair share of legends, but few have left a mark as indelible as Greg Chappell. The former Australian cricket captain, who graced the pitch during the 1970s and early 80s, has fallen upon challenging times, leaving his friends, teammates and fans deeply concerned about his well-being. At the time of writing, the cricketing community has rallied to support him in a bid to provide the assistance he so desperately needs. Chappell, a figure synonymous with the sport, recently organised a <a href="https://www.gofundme.com/f/gc-tribute-lunch" target="_blank" rel="noopener">GoFundMe page </a>with the ambitious goal of raising $250,000. The campaign has garnered almost $90,000 in donations, with a substantial contribution of $25,000 from high-profile businessman and cricket enthusiast, Greg Boorer. This heartwarming response signifies the deep respect and admiration that people have for the cricketing icon. Chappell's plight came to the forefront when a testimonial lunch was held in his honour at the Melbourne Cricket Ground last Monday. The GoFundMe initiative was launched after it became apparent that arranging donation facilities at the event would be logistically challenging. The driving force behind the lunch, businessman and close friend Peter Maloney, expressed his concerns for Chappell's well-being, stating, "Greg is a very proud man. He's doing it tougher than what he says." It is worth noting that Greg Chappell is also the face of the Chappell Foundation, which has raised an impressive $1 million this year for homeless youths. However, Maloney emphasised that Chappell has never taken a cent out of the foundation, despite being entitled to do so. This selflessness exemplifies Chappell's commitment to making a positive impact on society, even during his personal hardships. During the 1970s and '80s, Chappell was a cricketing sensation, sharing the field with other greats like Dennis Lillee, Rod Marsh and Jeff Thomson. As a member of the illustrious Chappell family, which includes brothers Ian and Trevor, he is part of a dynasty that holds a revered place in Australia's rich sporting history. However, unlike many of today's athletes, Chappell's era did not offer the financial rewards that modern sports stars enjoy. Even after retiring, he chose to maintain a low profile and never fully embraced the spotlight of full-time commentary roles or media engagements. Instead, Chappell worked behind the scenes on cricket boards, undertook selector roles, and had a brief stint as a coach for the Indian cricket team. Chappell, displaying his characteristic humility, stated, "I'm not on the bones of my arse. I certainly don't want it to sound like we're in desperate straits, because we're not... but we're not living in luxury either. I think most people assume that because we played cricket, we are all living in the lap of luxury. While I'm certainly not crying poor, we're not reaping in the benefits that today's players are." The initiative to organise the testimonial lunch for Chappell came from Peter Maloney, who recognised his friend's health issues and financial difficulties. Maloney's suggestion that Chappell deserved a testimonial dinner finally saw the light of day after a heartfelt conversation with Greg and his wife. The outpouring of support for the Australian cricketing legend on the GoFundMe platform is nothing short of heartwarming. People from all walks of life have come forward to express their admiration and appreciation for Chappell's contributions to the sport and society: "Greg Chappell is a cricket great, an inspiration for all aspiring players. He certainly deserves our support, in whatever small way we can," wrote one supporter. "Dear Greg, What a phenomenal cricketer you were! It is still a treat to watch your batting videos on YouTube. Wishing you all the best..." wrote another. "You're a true Australian sporting legend. I remember doing a school project on you back in high school. Enjoy your retirement Greg, you deserve it," wrote a third. It's evident that Greg Chappell holds a special place in the hearts of cricket fans and Australians alike. As he faces his current challenges, the cricketing community is rallying together to ensure that this iconic figure receives the support he needs during this difficult phase of his life. It's a reminder of the enduring impact and admiration he has garnered throughout his remarkable career. Image: GoFundMe

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"I’m not going to be cured". How breast cancer awareness and support sidelines people with metastatic disease

<a href="https://theconversation.com/profiles/sophie-lewis-111177">Sophie Lewis</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>; <a href="https://theconversation.com/profiles/andrea-smith-15431">Andrea Smith</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>, and <a href="https://theconversation.com/profiles/katherine-kenny-318175">Katherine Kenny</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a> There have been incredible <a href="https://www.cancer.gov/types/breast/research">advances</a> in breast cancer diagnosis and treatment in recent years. And stories about celebrities who have “beaten” breast cancer continue to be a source of inspiration for many people. However, this emphasis on fighting, beating and surviving cancer shuts out the voices of those who will not survive. That is, the many people diagnosed with incurable, life-limiting metastatic breast cancer, <a href="https://www.aihw.gov.au/reports/cancer/cancer-data-in-australia">which kills nine Australians every day</a> or nearly <a href="https://www.aihw.gov.au/reports/cancer/cancer-data-in-australia">3,300 people</a> a year. Yet an <a href="https://www.bcna.org.au/latest-news/bcna-news/making-metastatic-breast-cancer-count/">estimated 10,000</a> Australians are living with the diagnosis. Being diagnosed with metastatic breast cancer, as one of the authors has been, means ongoing treatment to live as long, and as well, as possible. It also means an ongoing need for emotional and practical support. However, society, health-care professionals, cancer advocacy organisations, even a patient’s closest family and friends, can struggle to understand what it is like to live with an incurable and life-limiting cancer and how best to provide support. <h2>Why is there so little awareness?</h2> <a href="https://www.breastcancer.org/types/metastatic">Metastatic breast cancer</a>, also called stage four breast cancer, is the most serious form of breast cancer. Unlike early breast cancer that is contained within the breast or nearby lymph nodes, metastatic breast cancer has spread to other parts of the body, most often the bones, lungs, liver, or brain. There is no cure for metastatic breast cancer despite decades of advocacy, funding and research. Treatment continues for as long as it helps to control the cancer and is tolerated by the patient. Median survival is <a href="https://onlinelibrary.wiley.com/doi/10.5694/mja2.51687">two to three years</a>, although newer, novel treatments mean some patients are living much longer. As a society, we can be uncomfortable <a href="https://theconversation.com/before-you-go-are-you-in-denial-about-death-34056">talking about and facing death</a>. When it comes to cancer, we usually prefer focusing on good news stories. These narratives are often perceived to be better for fundraising and are reassuring for people newly diagnosed. But they fail to <a href="https://onlinelibrary.wiley.com/doi/10.1111/1467-9566.13704">represent</a> the diversity and reality of cancer experiences. Despite considerable research into people with non-metastatic breast cancer, <a href="https://www.bcna.org.au/latest-news/bcna-news/making-metastatic-breast-cancer-count/">relatively little</a> is known about Australians with metastatic breast cancer. <h2>Feeling silenced and unsupported</h2> Through our <a href="https://onlinelibrary.wiley.com/doi/10.1111/1467-9566.13704">research</a> we wanted to better understand people’s experiences of metastatic breast cancer. We interviewed 38 participants from around Australia with diverse experiences of metastatic breast cancer. Participants were recruited through breast cancer and community organisations. We found messages and public campaigns about cancer survivorship, which emphasise hope and positivity, drowned out the voices of those with metastatic breast cancer. The focus on “success stories” about surviving breast cancer made some people feel like it was their responsibility to “beat” cancer. If they didn’t, it was their own fault. As one interviewee told us: "I react quite badly to all the, ‘we’ve had breast cancer and we beat it and we’ve survived. Aren’t we fantastic.’ There’s almost a feeling if you haven’t beaten your breast cancer you haven’t tried hard enough." Silence around metastatic breast cancer was common in research participants’ experiences. It prevented many from connecting with others and to the support they needed. It even affected relationships with those closest to them leaving them feeling misunderstood: "They don’t realise I’ve got to be on treatment forever. I’m not going to be cured. I think society thinks everything can be fixed; metastatic breast cancer actually can’t be fixed." Sharing deep fears and worries about their life expectancy can leave people with metastatic breast cancer feeling drained rather than supported. Many participants reported having to support and shield family, friends, acquaintances and work colleagues from the reality of their terminal diagnosis. "You hide how you feel because you don’t want to be avoided […] You put on that big, happy face. But like an onion if you peeled the layers away, you’d find out what’s going on." While many participants wanted to join a community of people with metastatic breast cancer, they struggled to know how to find one. Those who did, emphasised how invaluable it had been: "Being able to identify with and know that these people really get me is a huge relief and it reduces the isolation." These findings echo <a href="https://www.bcna.org.au/media/alcjjmm2/bcna_member-survey-report_2017.pdf">previous research</a> demonstrating people with metastatic breast cancer have higher support needs than those with non-metastatic breast cancer. And these needs are <a href="https://www.bcna.org.au/media/alcjjmm2/bcna_member-survey-report_2017.pdf">less likely to be met</a> by <a href="https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-022-08269-8">health care, support services</a>, family or friends. <h2>A new path</h2> Being diagnosed with metastatic breast cancer can be terrifying, lonely and create significant support needs. It is essential people with metastatic breast cancer have their <a href="https://ascopubs.org/doi/10.1200/OP.20.00183">voices listened to</a> and their needs met. Next steps should include: <ul> <li> <a href="https://bcna-dxp.azureedge.net/media/d32bhdzf/bcna_making-metastatic-breast-cancer-count_2022.pdf">improving data collection by cancer registries</a> so we know exactly how many people in Australia have metastatic breast cancer </li> <li> increasing representation of people with metastatic breast cancer in advocacy, support organisations and research </li> <li> nationwide access to peer-to-peer programs and professionally led metastatic breast cancer support groups. </li> </ul> We must ensure people with metastatic breast cancer are the ones to speak to their experience and needs. As a colleague with metastatic breast cancer said: "I read an article written by an early-stage breast cancer ‘survivor’. It felt like someone describing winter when they had only ever experienced autumn." If you or someone you know has metastatic breast cancer, these organisations may be able to support you or connect you with others with the same diagnosis: <ul> <li> <a href="https://www.bcna.org.au">Breast Cancer Network Australia</a> for information and support </li> <li> <a href="https://www.mcgrathfoundation.com.au/">McGrath Foundation</a> for information about access to metastatic breast care nurses. </li> </ul> <hr /> The authors would like to thank the members of Breast Cancer Network Australia’s Metastatic Breast Cancer Lived Experience Reference Group for their review of this article.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/215458/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/sophie-lewis-111177">Sophie Lewis</a>, Senior Lecturer, University of Sydney, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>; <a href="https://theconversation.com/profiles/andrea-smith-15431">Andrea Smith</a>, Research fellow, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>, and <a href="https://theconversation.com/profiles/katherine-kenny-318175">Katherine Kenny</a>, ARC DECRA Senior Research Fellow, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/im-not-going-to-be-cured-how-breast-cancer-awareness-and-support-sidelines-people-with-metastatic-disease-215458">original article</a>.

Caring

4 ways to support someone with dementia during extreme heat

<a href="https://theconversation.com/profiles/nikki-anne-wilson-342631">Nikki-Anne Wilson</a>, <a href="https://theconversation.com/institutions/unsw-sydney-1414">UNSW Sydney</a> Our ability to adapt our behaviour to changes in temperature takes a significant amount of thought and decision making. For example, we need to identify suitable clothing, increase our fluid intake, and understand how to best keep the house cool. A person with dementia may find some or all these things challenging. These and other factors mean, for someone with dementia, extreme heat <a href="https://pubmed.ncbi.nlm.nih.gov/31520832/#:%7E:text=Conclusion%3A%20Heatwaves%20increased%20the%20risk,heat%2Drelated%20Alzheimer's%20disease%20burden.">can be deadly</a>. But as the temperature rises, friends, relatives and carers can help. <h2>El Niño means there are challenges ahead</h2> The recent declaration of <a href="https://www.abc.net.au/news/2023-09-19/bureau-of-meteorology-el-nino-blog/102875154">another El Niño</a> means we need to think about how we can best support those more vulnerable to be safe during the warmer months. Extreme heat and bushfires bring unique challenges for someone with dementia. Bushfires have a significant impact on older people’s mental health. But they generally <a href="https://www.health.act.gov.au/sites/default/files/2023-03/PATH_Impact%20of%202019-20%20Bushfires%20on%20a%20Cohort%20of%20Older%20Adults_REPORT_V3_0.pdf">bounce back</a> quickly. However, for someone with dementia, extreme heat can lead to a <a href="https://www.sciencedirect.com/science/article/pii/S0013935119305110">significant deterioration</a> in their overall health and they may not recover. Emergency evacuations can also be confusing and distressing for a person with dementia, so it is important to think ahead. <h2>Why are people with dementia more at risk?</h2> Dementia can affect the parts of the brain that help <a href="https://academic.oup.com/brain/article/138/11/3360/332653?login=true">regulate</a> our body temperature. Some <a href="https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0243665">medications</a> can also increase someone’s sensitivity to heat. Problems with memory and thinking associated with dementia <a href="https://www.alzheimers.org.uk/get-support/daily-living/drinking-hydration">means</a> remembering to drink or communicating you are thirsty can be challenging. Heat can affect everyone’s mood. But if someone with dementia becomes dehydrated this can <a href="https://www.alzdiscovery.org/cognitive-vitality/blog/can-dehydration-impair-cognitive-function">increase</a> confusion and agitation, making it harder for them to know how to cool down. A person with dementia can also wander and become lost, which can be dangerous in extreme heat. <h2>4 ways to support someone with dementia</h2> 1. Avoid dehydration and heatstroke Try to avoid dehydration by encouraging someone to drink throughout the day. It’s better to have <a href="https://pubmed.ncbi.nlm.nih.gov/31769256/">small amounts</a> of liquid regularly instead of a large amount all at once. Little and often will help maximise hydration while avoiding sudden trips to <a href="https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/dementia-continence-issues#causes-of-incontinence-in-people-with-dementia">the bathroom</a>. Try to offer different types of drinks, or ice blocks. Placing drinks in sight can help as a reminder to drink. Choose foods with a high liquid content, such as fruit, salads, cool broths and yoghurt. Look out for <a href="https://www.nia.nih.gov/health/hot-weather-safety-older-adults#:%7E:text=Signs%20of%20heat%20stroke%20are,as%20under%20shade%20or%20indoors.">signs of heatstroke</a>, such as increased confusion beyond what the person would usually experience. Heatstroke may be more difficult to spot in someone living with dementia so it is important to check in when possible and to help them cool down if needed. 2. Cool the home Try to modify their home to make it easier to stay cool. Some air-conditioners have complex settings so make sure the temperature is set appropriately and the person with dementia knows how to use the controls. It is important to keep blinds and curtains shut where possible to reduce heat. However, ensure the <a href="https://www.scie.org.uk/dementia/supporting-people-with-dementia/dementia-friendly-environments/lighting.asp">lighting is adequate</a> to avoid falls. Try to support the person to make suitable clothing choices for the season by having cool, lightweight options easily available. 3. Think about communications early If someone with dementia lives alone, consider how you will maintain contact in an emergency. Some people may not realise many landlines don’t work in a power outage, and of course, mobile phones can’t be recharged. Ensure the person with dementia has access to an <a href="https://www.telstra.com.au/support/category/home-phone/uninterruptible-power-supply">uninterruptable power supply</a>. This can help maintain communication for a few hours in a blackout. 4. Have an evacuation plan In case of fire, flash flooding or severe storm, <a href="https://dementiaresearch.org.au/wp-content/uploads/2017/10/2447_DCRC_Prep_natural_disaster_EBook_5.pdf">have an evacuation plan</a>. If the person with dementia attends a day or respite centre, know their plan too. The situation can change quickly in an emergency, and this can be particularly overwhelming for people with cognitive issues. Understand that someone with dementia may become distressed when their routine is disrupted. So be prepared with some simple activities or comfort items, current medications, and any specific medical information. Stay up-to-date with <a href="http://www.bom.gov.au/">current warnings</a> and act early whenever possible. <h2>We can all help</h2> It’s not just carers of people with dementia who can help. We can all ensure people with dementia stay safe and cool this spring and summer. So remember to check in on your relatives, friends and neighbours or arrange for someone to do so on your behalf.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/213987/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/nikki-anne-wilson-342631">Nikki-Anne Wilson</a>, Postdoctoral Research Fellow, Neuroscience Research Australia (NeuRA), <a href="https://theconversation.com/institutions/unsw-sydney-1414">UNSW Sydney</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/4-ways-to-support-someone-with-dementia-during-extreme-heat-213987">original article</a>.

Body

Ted Lasso star ordered to pay massive child support sum

Jason Sudeikis has been ordered to pay ex Olivia Wilde an enormous sum of child support, as a bitter two-year custody battle draws to a close. According to new court filings obtained by <a href="https://pagesix.com/2023/09/25/jason-sudeikis-and-olivia-wilde-settle-custody-battle-actor-to-pay-27500-per-month/" target="_blank" rel="noopener">Page Six</a>, the Ted Lasso star has allegedly agreed to pay his ex $27,500 ($A42,800) per month in child support for their two kids, Otis, 9, and Daisy, 6. The hefty settlement has been based on Sudeikis' reported 2023 income of $10.5 million ($A16.3 million) and Wilde’s estimated income of $500,000 ($A778,000). “The parties agree that child support for the minor children in the amount of $27,500 per month is sufficient to maintain the needs of the minor children considering Jason’s station in life … is consistent with each child’s best interest, and application of the guideline would be unjust or inappropriate in this case,” the court papers reportedly state. The legal proceedings began two years ago, and took a dramatic turn in 2022 when Wilde, who was promoting her new movie Don't Worry Darling at the time, was served legal papers while on stage delivering a speech at CinemaCon. At the time, a source told <a href="https://pagesix.com/2022/04/29/olivia-wilde-mortified-after-being-served-with-legal-papers/" target="_blank" rel="noopener">Page Six</a> that Wilde was mortified over the brazen act. “It seemed unthinkable to her, and it took a moment to set in, but as mortifying as it was, she did not want to give a reaction,” the insider explained. Since then, things have improved for the couple, as they were both seen putting on a united front at Otis' soccer game in LA. Wilde and Sudeikis started dating in November 2011 and got engaged in January 2013. They welcomed their two kids before separating in November 2020. Image credits: Getty Images

Legal

Lisa Curry's emotional post sparks a wave of support and love

Lisa Curry has shared a heartfelt tribute on the third anniversary of her daughter Jaimi's death. Jaimi passed away in 2020 after a long health battle, at just 33 years old, and is the daughter of Lisa and former Ironman Grant Kenny. Lisa took to Instagram to commemorate her daughter with a painting of Jaimi that she commissioned to a local artist, and share her grief journey. "3 years ago, our beautiful daughter Jaimi took her last breath. We all love you and miss you everyday Jaimi and hope you’re at peace. It still feels like yesterday," she began the long and emotional post. “We all love you and miss you every day Jaimi and hope you’re at peace. “It’s been a s*** and sad week, where I’ve needed lots of hugs and am constantly wiping my tears away. I tell myself to breathe because I know it’s a bad day, not a bad life. “I’m doing ok ... but feeling sad on the inside while trying to be happy on the outside is overwhelming and feels exhausting," she added. Lisa also said that sometimes she can barely recognise herself in the mirror because she looks like "a mess" and other times she sees "the old Lisa." "The path to recovery is long and can only be done in my own time. "The last 3 years has been a long, slow, painful, uneventful decline in my health and my soul. I talk out loud, frustratingly scolding myself to get my s*** together. There are days when I don’t care about anything. "I need to change that talk to be more positive and give myself permission that it’s ok to move forward. "Moving on doesn’t mean letting go. I will never let her go," she added. <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/CxJb9jkhg5C/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/p/CxJb9jkhg5C/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by Lisa Curry AO (@lisacurry)</a> </div> </blockquote> Lisa then said that she needed to start looking after herself so she can be "the mother, grannie, wife and friend that I should be." She then thanked local artist Donna Munro for the beautiful painting of her daughter, before asking her fans if they were okay, after noting that it was R U OK Day. She reminded fans to talk to someone and sent “Love and strength to everyone who’s struggling for whatever reason.” Her followers flocked to the comments to offer their love and support, and thanked her for being open and vulnerable. “Do what you can today Lisa and let tomorrow take care of the rest. Your baby mattered, your grief at her loss is justifiable. Don’t punish yourself for not having a heart of stone. One step after another, no time limit. ❤️🙏🌸” wrote one fan. “Sending love, Lisa. Can’t imagine your pain," commented another. “You’re very brave Lisa, sending strength and a big hug, we who have lost a piece of our heart knows how hard it is," wrote a third. "The words I say will never ease the pain but know you are a beautiful strong woman who inspires more people than you would ever know with your honest and raw feelings on grief. Hugs to you," commented a fourth. "I hope that you find a little comfort in the fact that you would have helped so many other people going through similar grief. Sending much needed hugs and sunshine," added another. Images: Instagram

Caring

Charlie Teo's great walk of support

Neurosurgeon Dr Charlie Teo has now accepted work in China following the imposed conditions on his practicing certificate after complaints from the families of two patients. Despite the restrictions, many patients still in need of his surgical skills are expressing disbelief over the situation. In a message posted to social media, Dr Teo has urged his supporters to join him in solidarity for a walk across Sydney Harbour Bridge – and dozens have already committed to the walk, which will take place in September. “Many have asked what you can do to show your support," wrote the embattled surgeon. "Well, I would be honoured if you would join me in solidarity on the Sydney Harbour Bridge.” Patients are rallying their friends and family to walk with Dr Teo on September 17, in a message that emphasised that Dr Teo remains determined and will be present for the event after flying in from Spain. The decision to work in China and other countries came after the Health Care Complaints Commission (HCCC) found Dr Teo guilty of "unsatisfactory professional conduct", a verdict he vehemently denies. Dr Teo addressed those affected by brain cancer, acknowledging the severity of the disease and emphasising the importance of the Charlie Teo Foundation in offering hope and support to those affected. Dr Teo affirmed that while he would be working in various countries, he still considers Australia his home. He expressed sadness over his recent experiences within the Australian medical system but remains motivated by the work he continues to do worldwide. The announcement of Dr Teo's decision to focus on China garnered hundreds of supportive comments from social media users, along with comments left on news articles. Dr. Teo confirmed that he would soon be performing complicated brain stem surgeries in China, acknowledging that his future in Australia is likely over. As he told the <a href="https://www.dailytelegraph.com.au/news/nsw/charlie-teo-ive-been-crucified-i-have-no-choice-but-to-try-china/news-story/61bb1af2516de2705d55143c53dece47" target="_blank" rel="noopener">The Saturday Telegraph</a>: “I am not guilty of what I am accused of. I reject what they say I have done. They just don’t believe me, so why would I show remorse for something that I deny?” “I could appeal, I think I would win. They wouldn’t be able to prove beyond a reasonable doubt the things they have accused me of because they are not true. But I’m not sure I have the strength to run an appeal. Furthermore, I don’t have the money to do so,” he said. “And then the whole emotional turmoil.” Dr Teo instead will focus on saving lives in countries that will allow him to. “I have just been granted privileges in China, in three different hospital,” he said. “The fact that I have been crucified over here didn’t appear to affect their decision, so I am going over there to check the facilities, make sure they are good. They just bought the latest MRI for me.” Dr Teo said he was committing to a future in China “because they have committed to me” and would continue to do the occasional cases in Europe and parts of Southeast Asia that required his expertise. He expressed disappointment but not surprise at the conditions placed on his practicing certificate following an investigation into two brain surgeries with adverse outcomes. Dr Teo categorically denied any failure to obtain proper consent or lacking empathy for his patients. He expressed his reluctance to appeal the decision due to the emotional turmoil and financial constraints associated with it. Instead, he will focus on saving lives in countries that permit his expertise. Having recently been granted privileges in three hospitals in China, Dr Teo expressed his commitment to this new chapter in his career. He mentioned that the accusations against him would not hold up if challenged but admitted uncertainty regarding his ability to endure an appeal process. Dr Teo's primary concern lies in ensuring quality facilities and patient care in China. While he plans to continue performing occasional cases in Europe and Southeast Asia, he lamented the fact that he can no longer assist patients in his home country. Dr. Teo criticised the recent findings by the HCCC, stating that they send a negative message to doctors who offer contrary second opinions. He expressed concern that neurosurgeons across Australia may become reluctant to undertake risky surgeries, fearing media scrutiny and judgment from colleagues who lack the necessary expertise to treat complex tumour cases. Dr Teo also revealed that he continues to receive regular calls from individuals suffering from rare brain tumours seeking his help, but he is forced to turn them away. Image: Wikimedia

Caring

Father of murdered Aussie soldier voices support for Ben Roberts-Smith

The father of an Australian soldier murdered in Afghanistan has spoken out in defence of former SAS member Ben Roberts-Smith. Hugh Poate’s son, Robert, was playing cards with two other Australians when they were tragically shot by a rogue Afghan soldier named Hekmatullah in 2012. According to Poate, Roberts-Smith was simply following orders in a bid to apprehend Hekmatullah, who had brutally taken the lives of their son. Acting on intelligence, they were taken to the village of Darwan, where Roberts-Smith had allegedly kicked a farmer named Ali Jan off a cliff and ordered his execution. “These citizens in the village could well have been a civilian one day and pulling the trigger the next, that‘s the way the Taliban operated. This perspective should have been included to provide some balance and context,” Poate told the Daily Telegraph. The federal court <a href="https://www.oversixty.com.au/finance/legal/a-win-for-the-press-a-big-loss-for-ben-roberts-smith-what-does-this-judgment-tell-us-about-defamation-law" target="_blank" rel="noopener">dismissed</a> Roberts-Smith’s defamation trial against the Sydney Morning Herald, The Age, and the Canberra Times, with Justice Besanko concluding the various titles had substantially proven the former soldier unlawfully killed four unarmed Afghan prisoners during his service in the SAS between 2009 and 2012. The judgement also acknowledged instances of Roberts-Smith’s alleged bullying of fellow soldiers. However, the court dismissed two other murder allegations and an accusation that he had assaulted his mistress. In his thorough 736-page judgement, the judge determined that Roberts-Smith and four key witnesses called to testify were both dishonest and unreliable in their evidence. Following the release of the completed judgement, Roberts-Smith’s legal team is now closely inspecting the document to identify potential grounds for an appeal. Poate emphasised the fact that Hekmatullah was captured and convicted of war crimes and subsequently released. In comparison, Roberts-Smith <a href="https://www.oversixty.com.au/news/news/australian-war-memorial-urged-to-remove-ben-roberts-smith-s-uniform-from-display" target="_blank" rel="noopener">has not been convicted</a> of any war crimes. Potae perceives the treatment of Roberts-Smith as a case of double standards. Additionally, Poate asserted that the responsibility for any wrongdoing committed by the SAS in Afghanistan lies with others in the Australian Defence Force (ADF). By acknowledging the collective accountability within the organisation, Poate has suggested a wider perspective on the matter. Image credit: Getty

Legal

6 ways to be more supportive to those closest to you

Susan Krauss Whitbourne is a professor of Psychology and Brain Sciences at the University of Massachusetts Amherst. She writes the Fulfilment at Any Age blog for Psychology Today. During difficult periods of life, such as experiencing a tragic loss or sudden break-up, those you care about need you to be there for them. At other times, your loved ones may not need help, but at least would like some support and encouragement. It’s well known that receiving social support is one of the best and most effective ways to cope with stress. People who perceive themselves to be supported are also most likely to be happier, and may even live longer than those who don’t. New research on social support for parents of autistic children shows just how you can be the person on whom your loved ones can most rely. The ageing parents of adult children with autism spectrum disorders (ASD) undoubtedly face major challenges in their daily life and, according to this new research, benefit tremendously from the type of social support that friends and loved ones can provide. Christine Marsack, in the School of Social Work at Eastern Michigan University, teamed up with Preethy Samuel of Wayne State University (2017), to investigate the role of social support in mediating the amount of perceived burden and quality of life. As the authors point out, caregiving research on adult children and their ageing parents has typically focused on predicting burden in the children. There is far less known about what happens to ageing parents when it’s the children themselves who are in need of caregiving. The Michigan team based their work on the cognitive model of stress and coping, in which it’s the appraisal of an event as stressful that leads it to have a negative impact on the individual. In the case of parents of children with ASD, after coping with the challenge of receiving the diagnosis itself, their next step is to come “to grips with the condition and obtain access to support services to assist with caregiving” (p. 2379). The question that Marsack and Samuel investigated was whether formal or informal social support would have ameliorating effects on parental stress. Using a sample of 320 parents aged 50 and older, the majority of whom were under 70 years of age, the research team administered an online survey inquiring about psychological quality of life, perception of caregiving burden, contact with formal support agencies, and perceived degree of informal social support. Formal supports were used heavily by sample members, including psychiatric, financial, counselling, and adult day care, for example. Even the relatively wide range of opportunities to get help in this way was not enough to stave off the effects of perceived burden on parental mental health outcomes. Instead, it was their answers to a six-item questionnaire of informal support that proved to be key in reducing their perceived stress. The questionnaire used by Marsack and Samuel was one developed for use in assessing perceived availability of social support by coronary heart disease patients that has been widely adapted to other situations. It’s from this measure, known as the Enhancing Recovery in Coronary Heart Disease (ENRICHD) Social Support Index (ESSI), that we can now look to see how you can support people coping with challenges in their own lives right now: 1. Be available to listen. The ESSI asks whether there is someone who will be available to listen when needed. This means that you provide a sounding board when the person who needs your support approaches you. It doesn’t mean that you provide help regardless of whether you’re being asked for it. Let the person you care about know that you’re willing to listen, uncritically, when the situation demands it. 2. Be available with advice. When you are approached for help, providing advice can prove to be very supportive. Again, providing unsolicited advice isn’t perceived as particularly supportive, but being ready for it when asked will help ensure that your advice hits a receptive audience. 3. Show love and affection. Without providing anything in the way of objective support, it’s often enough just to know that someone cares to help get the stressed individual through tough times. The love and affection could be of the face-to-face form, and it's probably best when it is, but it can also come in the form of virtual cheers. 4. Help out every now and then with daily chores or by running errands. This is something you need to be able to do in person, so if you live some distance away from the individual you would like to support, it may mean that you take a trip there every few months to do some of the heavy lifting around the house, or just help with some on-site logistics. 5. Support the individual during the decision-making process. The person you care about may have to come up with plans that require more than just a sounding board or advice. Being patiently willing to go through the steps required to solve the problem can give the person you care about a more balanced perspective than would be possible if he or she were making this decision alone. 6. Be a person who the person you care about can trust and confide in. The ESSI inquires about being actually present, but if this isn’t feasible, that quality of being trustworthy seems to be key. Caring for an adult child with ASD may have led some of the parents to wish they could talk about their frustrations, perhaps even about those they felt toward their spouse, with someone outside the relationship. Worrying that the person they told might violate that trust would only add to the stress of their situation. You might think it’s enough for the person you care about to sign up for an established support network or to be able to receive financial or emergency assistance. The Marsack and Samuel study shows that the quality of the friendship, trust, and sensitivity you provide that can make an even greater difference. There’s no way to avoid all of the stressful situations that life can present, whether through family situations, work problems, or emergencies. Fulfillment in our relationships involves, as this study shows, that willingness to give the support that will make the most difference in helping those we care about. Written by Susan Krauss Whitbourne. Republished with permission of <a href="https://www.psychologytoday.com/files/attachments/4141/the-neuroscience-joyful-education-judy-willis-md.pdf" target="_blank" rel="noopener">Psychology Today</a>. Images: Getty

Relationships

“We can be better”: Support flows for outgoing ABC host Stan Grant

Australians have banded together in support of veteran journalist Stan Grant, flocking to social media to rally behind the resigning Q+A host after his final show at the helm. Grant’s final panel discussion saw the likes of Labor member Michelle Ananda-Rajah, Liberal member Zoe McKenzie, Independent Senators David Pocock and Tammy Tyrrell, and Greens member Griffith Max Chandler-Mather. The panel of first-term parliamentarians were there to review the Albanese government’s initial year in charge following their federal election win. It marked Grant’s final discussion in the wake of his decision to step back from the show, an announcement that had come following the host’s experiences with racial abuse. The first audience question of the session cut right to the chase, with one member - Anaru August - raising the matter of the abuse directed at Grant. “I have been disgusted by the hatred and abuse that has been fired at Stan Grant because of his colour and the articulation of his professional essence,” August said, before asking the panel “what needs to happen to stop hate speech?" The question drew immediate praise across social media, from both fans of Grant and the show, to Indigenous advocates, and his colleagues at the ABC. It wasn’t the first show of support from the latter, either, with a group of hundreds gathering outside the ABC’s Sydney headquarters that same day to spread the message that “enough for enough”, and that they stood with Stan. "The line in the sand is here, and we will not tolerate our staff being subjected to racial abuse, or any form of abuse. It must stop," ABC News Director Justin Stevens said of the move. "I would say, other sections of the media that play a part in facilitating, encouraging, or drawing attention to this ... need to take a really good hard look at themselves and the role they play. "We all stand with Stan. The abuse he copped is abhorrent and egregious and needs to stop. I'm incredibly sorry that he felt let down by our organisation, that we could have done better by him in defending him. We will do all we can to make up for it from this moment. "It's important we create a safe space for Indigenous and diverse journalists." It was a message continued in feedback over the episode, with not-for-profit inclusivity advocacy group Media Diversity Australia noting that Grant was “One of Media Diversity Australia's earliest and most high-profile supporters … A mentor to countless young reporters, especially Blak reporters … Stan Grant is a tireless veteran journalist that we admire, support, and respect” along with the hashtag “#IStandWithStan”. <blockquote class="twitter-tweet"> 📣 One of Media Diversity Australia's earliest and most high-profile supporters. 📣 A mentor to countless young reporters, especially Blak reporters. 📣 Stan Grant is a tireless veteran journalist that we admire, support, and respect.<a href="https://twitter.com/hashtag/IStandWithStan?src=hash&ref_src=twsrc%5Etfw">#IStandWithStan</a> <a href="https://t.co/rPUSEZ7AfN">https://t.co/rPUSEZ7AfN</a> — Media Diversity AU (@MediaDiverseAU) <a href="https://twitter.com/MediaDiverseAU/status/1660614419859259394?ref_src=twsrc%5Etfw">May 22, 2023</a></blockquote> It was a message that continued through the flood of tweets, with Seven News reporter Christie Cooper writing that racism, and “personal attacks on journalists”, were not okay. “#IStandWithStan,” she said, “and I’m so sorry Stan Grant has been so hurt by racial commentary, both in and out of the media, that it’s forced him to walk away. It’s 2023, it’s not good enough.” “Solidarity to the ABC journalists standing in support of their colleague Stan Grant and to all journalists who face racists and racism for doing their job,” one supporter added. “Look at the replies to their tweets. It's not the exception, it is the rule. “Australians need to reckon with our racism.” As Grant himself said when closing his final episode, “to those who have abused me and my family, I would just say - if your aim was to hurt me, well, you’ve succeeded. "I'm sorry. I'm sorry that I must have given you so much cause to hate me … I will get back up. And you can come at me again, and I will meet you with the love of my people. "My people can teach the world to love." It was a moment that resonated with viewers, with one taking to social media to share that ”history will remember this moment. A moment when Stan Grant, his passion as palpable as his pain, spoke poignant truths to Australia & bravely faced his racism with power, love & grace. Solidarity.” <blockquote class="twitter-tweet"> "Sometimes, strength is knowing when to say stop." History will remember this moment. A moment when Stan Grant, his passion as palpable as his pain, spoke poignant truths to Australia & bravely faced his racism with power, love & grace. Solidarity. <a href="https://twitter.com/hashtag/QandA?src=hash&ref_src=twsrc%5Etfw">#QandA</a> <a href="https://twitter.com/hashtag/IStandWithStan?src=hash&ref_src=twsrc%5Etfw">#IStandWithStan</a> <a href="https://twitter.com/hashtag/auspol?src=hash&ref_src=twsrc%5Etfw">#auspol</a> <a href="https://t.co/fVjUVvZ9GE">pic.twitter.com/fVjUVvZ9GE</a> — Sahar Adatia (@sahar_adatia) <a href="https://twitter.com/sahar_adatia/status/1660644110770814976?ref_src=twsrc%5Etfw">May 22, 2023</a></blockquote> Images: Q+A / ABC

Ally Langdon breaks down in tears over 13-year-old life support patient

Ally Langdon has broken down in tears while hearing the heart-breaking story of 13-year-old Esra Haynes. The A Current Affair host was joined by Esra’s parents, who shared that their daughter had fallen victim to the dangerous practice of “chroming”. Chroming is when a person inhales solvents or other household chemicals, or aerosol deodorant in Esra’s case, to get high. Esra’s parents, Paul and Andrea, recalled receiving a phone call while their daughter was at a sleepover that changed their lives forever. Over the Easter long weekend, the teenager had gone into cardiac arrest as a call was made to the parents to “Come and get your daughter”. When Andrea arrived at the home, police and paramedics were trying to resuscitate the teen before she was taken to hospital and placed on life support. Just eight days later, Esra passed away. “We thought we would bring her home,” Andrea <a href="https://9now.nine.com.au/a-current-affair/esra-haynes-melbourne-family-open-up-to-ally-langdon-about-tragic-chroming-trend-that-killed-daughter/7b4fcf4e-662b-4a91-8875-76fa4024a31a" target="_blank" rel="noopener">told </a>Langdon. “We still had hope, we did not think the worst,” Paul said. Although her parents were optimistic their little girl would recover, a scan revealed Esra had sustained irreparable brain damage from the dangerous chemicals. The couple were forced to make the painful decision to turn off Esra's life support, and were told to bring in friends and family to say their final goodbyes to the teenager on her deathbed. “She was put onto a bed so we could lay with her,” a heartbroken Paul said. “We cuddled her until the end.” Langdon was visibly overwhelmed by the parents' memories of their final day with their daughter, and teared up alongside them. Andrea and Paul are now dedicating their time to educating young people about the dangers of chroming, which has claimed the lives of more than a dozen young Australians since 2009. <blockquote class="twitter-tweet"> The Haynes family have an unimaginable pain that they'll never recover from. After losing their 13-year-old loved one to a dangerous teen craze, they're now pleading with families across the nation to try and stop anyone else going through the same heartbreak. <a href="https://twitter.com/hashtag/9ACA?src=hash&ref_src=twsrc%5Etfw">#9ACA</a> <a href="https://t.co/zZt1MF6way">pic.twitter.com/zZt1MF6way</a> — A Current Affair (@ACurrentAffair9) <a href="https://twitter.com/ACurrentAffair9/status/1660529859897200640?ref_src=twsrc%5Etfw">May 22, 2023</a></blockquote> “It's unquestionable that this will be our crusade,” Paul told the <a href="https://www.heraldsun.com.au/news/victoria/lilydale-high-school-mourns-loss-of-muchloved-year-7-student-esra-haynes/news-story/4d58fa97b02019475bc830920f32c357" target="_blank" rel="noopener">Herald Sun</a>. “No matter how much you lead a horse to water, anyone can drag them away. It's not something she would have done on her own.” Esra’s family and friends have honoured her memory online, with a flood of tributes from her loved ones recalling her sweet nature. One of her closest friends wrote on Facebook, “There wasn't one day in the past three years you've not made my day by your contagious laugh and gorgeous smile.” “My heart aches and it doesn't feel real knowing I'll have to say goodbye to you Esra. You're so young. You were gone too soon.” Image credits: A Current Affair

Caring

“She wasn’t ready to die”: Son speaks after mum on life support dies during power outage

A grieving son is calling for energy companies to do better after his mum, Gloria Shae, 80, who was on life support, died during a power outage in Dubbo. Gloria was found collapsed on the floor after her oxygen machine switched off during an unexpected blackout at around 5am on May 8. The great-grandmother was woken up out of a deep sleep and was later on found trying to reach for her bottled oxygen. Now, her son Brian Shae, has spoken up about the tragic incident and is calling for energy companies to do better. "She wasn't ready to die," Brian said. "She was full of life and energy, she had planned what she was doing the next day. He said that his mother was a registered life support customer with Origin Energy and Essential Energy. Neither Brian, who lives in the same property, nor Gloria were notified about the outage by their energy providers. "If there was some sort of automated system that sent out a text message, I could have been there in 30 seconds, in under a minute,” the grieving son said. "We could have assisted her, we could have got her oxygen bottles to her. "She does have oxygen bottles in the home but at night you rely on the oxygen generator." Although emergency services arrived about 15 minutes after Gloria was found, and they managed to restart her heart, Brian said that by then she was already brain dead. Gloria’s oxygen machine was rented and didn't come fitted with a back-up battery. Providers currently only need to give customers using life support four days' notice if there is a planned power outage, but in the case of a blackout there is nothing in place to contact their customers or the next of kin. Instead, they urge vulnerable customers to have a back-up battery or generator, to call triple-zero in an emergency, and to “have contingency plans in place”. “But how could an 80-year-old lady who has woken up out of a deep sleep (and) short of breath manage to go out (and) start a generator?” Brian asked. Health Minister Ryan Park described the death as a “terrible tragedy” and said that he has spoken with NSW Health. The Health Minister also encouraged energy companies to find better ways to support vulnerable customers. “If there’s anything that we could have done differently, we will look at that,” he added. An Essential Energy spokesperson has also commented and said that the team had personally contacted the family to extend their "deepest condolences". Images: 9News

Caring

Rare sighting as famous friends step out in support of Michael J. Fox

Michael J. Fox has been joined by a host of his famous friends for a screening of his upcoming documentary. The new documentary explores the Back to the Future star's ongoing battle with Parkinson's disease, and the changes in his life and condition as he gets older. In a show of support for the actor, his celebrity mates joined together for a screening of Still at New York's Lincoln Center. Among the famous faces was actress Meg Ryan, who has not been spotted in public for more than six months. The former rom-com queen, best known for starring roles in films like When Harry Met Sally, Sleepless in Seattle and You’ve Got Mail, lives a more quiet life outside of the spotlight these days. <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/Cr1TCUeO8e3/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/p/Cr1TCUeO8e3/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by Tracy Pollan (@tracy.pollan)</a> </div> </blockquote> Ryan hasn’t appeared on screen since the 2015 film Ithaca, which she also directed. However, she is plotting a return to screens later this year, with Ryan starring in and directing the film What Happens Later, which is currently in production. Ryan was among a star-studded group of famous friends supporting J. Fox for the premiere of his doco, with stars including Bill Murray, Denis Leary, Joan Jett, Katie Couric, Mariska Hargitay, and Debra Messing. The screening of the documentary comes after Michael J. Fox <a href="https://oversixty.com.au/health/caring/i-m-not-gonna-be-80-michael-j-fox-s-tragic-admission" target="_blank" rel="noopener">admitted</a> that his battle with the disease is getting more difficult. <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">“I’m not gonna be 80,” he said in a preview for an upcoming episode of the American current affairs program CBS Sunday Morning, according to Page Six. <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">In the clip, Journalist Jane Pauley tells Fox that he has “not squandered” but that his condition will eventually “make the call” as to when it’s his time to go. <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">“Yeah, it’s, it’s banging on the door,” the actor said. <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">“I’m not gonna lie. It’s gettin’ hard, it’s gettin’ harder. It’s gettin’ tougher. Every day it’s tougher.” <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">Image credits: Instagram

Caring

Go Floyd! Huge support for 9-year-old heading to World Dwarf Games

One multi-talented nine-year-old boy from Northern New South Wales is hard at work preparing to represent Australia at the World Dwarf Games. Floyd Morley was born with a form of dwarfism known as achondroplasia - a condition considered to be one of the most common types of short-limbed dwarfism, said to affect approximately one in every 25,000 people. His parents - mother Jade and father Ross - were initially concerned about the challenges their son may face in life, considering everything from potential health conditions to bullying. “At the beginning, we were really worried about all his health concerns,” Jade explained to A Current Affair’s Leila McKinnon, “we were worried that he was going to get picked on, we worried that he was going to get bullied.” However, all the pair truly wanted was for everyone to “celebrate him. He’s the best. He is the best kid.” After too much time spent unable to catch anyone playing tag, or finishing behind his peers in school races, Floyd was left feeling “very frustrated” and “very lonely.” “I didn’t really realise how much it affected him,” Jade admitted. “I didn’t really feel that confident,” Floyd explained, “of playing soccer. I only just took to surfing and handball.” And now, everyone will have the chance to see that Floyd is the best at what he does, with the nine-year-old’s sights set on competing in Germany alongside his friends and teammates. It was a convention for short-statured people that changed things, giving Floyd the opportunity he needed and deserved to find his confidence and joy in what he was doing. "He comes running up to me and he has had this beam of light and he was like, 'Mum, I caught them in tag'," Jade said of that pivotal moment. "No one was slowing down for him to catch them … then he participated in soccer and basketball and he was like, 'oh my God, I'm good at this'." As Floyd’s pride for himself and what he could accomplish grew, and his connection to those who were like him, so did Jade’s - as she had said, “I just want him to be proud and to have that real soul about him that’s like ‘I am proud of who I am’” - with his mother also confessing that it had been a “beautiful experience.” When asked what the upcoming World Dwarf Games meant to him, Floyd wasted no time in declaring that he “felt really proud of myself, I felt really great, I couldn’t wait to meet all these people that were just like me.” The games - which take place every four years in Germany - are run by volunteers, and the Australian team rely on fundraising and donations for their financial assistance. Funds go towards training costs for the athletes, as well as travel to and from the games, and are vital for budding talents such as young Floyd. Short Statured People of Australia set up a fundraiser for the 2023 competition, and their page has seen a flood of love and support for Floyd and his team, after Jade admitted that “we're looking for multiple sponsors or one really big sponsor. We've got shirts, we want to put sponsors' names on them." “You deserve the world Floyd,” wrote one donor. “Keep shining your magic!” “Go Floyd! And all the amazing guys and girls participating in the games,” said another. “What an inspiration you all are. I will be following these games all the way.” “Go Team Australia! Can’t wait for My Sophia to join you in the future!!” said one proud supporter. And as another put it, “way to go Floyd. You’re a true inspiration of your parents.” Images: A Current Affair / Nine

Caring

For some LGBTQ+ older people, events like World Pride can be isolating – we need to better understand how to support them

<a href="https://sydneyworldpride.com/">World Pride</a> has come to Sydney, with the annual <a href="https://sydneyworldpride.com/events/mardi-gras-parade/">Mardi Gras Parade</a> on Saturday having returned to its Oxford Street home for the first time in three years. The 17-day festival is expected to host 500,000 participants over more than 300 events. It is an opportunity to celebrate all things queer, and a good time to take stock of the changes LGBTQ+ older people have experienced, and the challenges they continue to face. LGBTQ+ people aged in their 70s, 80s and 90s have witnessed extraordinary social change regarding gender and sexual diversity. For example, in Australia, same-sex marriage is now legal, <a href="https://www.scientificamerican.com/article/where-transgender-is-no-longer-a-diagnosis/">Gender Identity Disorder</a> has been removed as a clinical diagnosis, and all states have an equal age of consent for homosexual and heterosexual sex. These have been hard-fought gains after many years of adversity and advocacy on the part of LGBTQ+ older people, among others. Each year, the <a href="https://www.78ers.org.au/">78ers</a> – who were involved in the Sydney marches and protests between June and August 1978 – take pride of place towards the front of the parade. <h2>Loneliness and social isolation</h2> Despite these achievements, the consequences of living most of one’s life in a homophobic and transphobic society have been considerable, particularly in terms of mental illness and social isolation. <a href="https://www.tandfonline.com/doi/abs/10.1080/00918369.2021.2005999?journalCode=wjhm20">Australian</a> and <a href="https://pubmed.ncbi.nlm.nih.gov/34326557/">US</a> research indicates loneliness is more common among lesbian, gay and bisexual older people than the general population. This is particularly so for those who live alone and are not in a relationship. Similar findings are reported in relation to <a href="https://www.lgbtagingcenter.org/resources/pdfs/LGBT%20Aging%20and%20Health%20Report_final.pdf">transgender older people</a>, although more research is needed. <a href="https://www.tandfonline.com/doi/abs/10.1080/00918369.2021.2005999?journalCode=wjhm20">Loneliness</a> is also more common among lesbian and gay older people who are disconnected from LGBTQ+ communities and who hold negative attitudes towards their own same-sex attraction. For LGBTQ+ older people experiencing social isolation and loneliness, what might be their experience of watching World Pride from a distance? What might it be like navigating rainbow paraphernalia while shopping at <a href="https://www.coles.com.au/about/sustainability/better-together/our-team/pride">Coles</a> (a World Pride partner)? How might they perceive the glitz and glamour of the Mardi Gras Parade? World Pride may be challenging for those who don’t feel an attachment to LGBTQ+ communities or who feel negative about their own sexuality. And this may reinforce a sense of disconnection. But some may gain comfort from witnessing the sense of community on display. It may even strengthen their perceived connection to other LGBTQ+ people. And, for those who are not open about their sexuality or authentic gender, it may support their journey to “come out” later in life. <h2>The impact of discrimination</h2> For many LGBTQ+ older people, the experience of discrimination remains very real in their lives. <a href="https://pubmed.ncbi.nlm.nih.gov/33770516/">Past and recent discrimination</a> leads to delays seeking treatment and support, simply because people expect to be discriminated against when accessing services. In Australia, previous discrimination has been found to predict <a href="https://www.tandfonline.com/doi/abs/10.1080/00918369.2021.2005999?journalCode=wjhm20">loneliness</a> and <a href="https://www.cambridge.org/core/journals/ageing-and-society/article/abs/recent-versus-lifetime-experiences-of-discrimination-and-the-mental-and-physical-health-of-older-lesbian-women-and-gay-men/90988215582414EA0AB7936B6384FC97">lower mental health</a> among older lesbian and gay people. In the US, <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6779303/">microaggressions</a> – small everyday interactions that reinforce the experience of being “other” – have predicted greater impairment, higher rates of depression and lower quality of life among LGBTQ+ people aged 80 and over. There remain major gaps in evidence on the issues faced by LGBTQ+ older people, particularly for bisexual, queer, transgender and nonbinary older people. This is mainly due to the failure to systematically collect inclusive data on gender and sexual diversity, through variables such as those recommended by the <a href="https://www.abs.gov.au/statistics/standards/standard-sex-gender-variations-sex-characteristics-and-sexual-orientation-variables/latest-release">Australian Bureau of Statistics</a>. <h2>Strengths and resilience</h2> This year, older people seemed to occupy a more prominent place in the Mardi Gras Parade. Perhaps this is because of the natural ageing of our community activists. Older people were also represented in the wider World Pride festival, such as in the theatre production <a href="https://sydneyworldpride.com/events/all-the-sex-ive-ever-had/">All the Sex I’ve Ever Had</a>, in which older Sydney residents reflect on the evolution of their sexuality over the course of their lives. A festival like World Pride showcases the strengths and resilience of LGBTQ+ people and communities. The organisation of such an event should not be underestimated. This reflects LGBTQ+ people’s high level of civic engagement and commitment to giving back to society, as demonstrated by their greater likelihood of being <a href="https://www.tandfonline.com/doi/abs/10.1080/0312407X.2021.1899256">volunteers</a> and <a href="https://www.caregiving.org/wp-content/uploads/2020/05/2015_CaregivingintheUS_Final-Report-June-4_WEB.pdf">caregivers</a>. And the contribution of volunteers and caregivers during the HIV/AIDS crisis of the 1980s and ‘90s is not forgotten. LGBTQ+ older people generally are <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5241752/">resilient and maintain good health</a>. Many report increased <a href="https://link.springer.com/article/10.1007/s13178-021-00653-z">confidence and self-esteem</a>, compared with when they were younger. And many have created their own families – their families of choice – to support each other in later life. But we don’t know enough about their needs and how to provide them with inclusive services as they get older. World Pride is an opportunity to reflect on the hard-won gains but not ignore the challenges ahead. Image credits: Getty Images This article originally appeared on <a href="https://theconversation.com/for-some-lgbtq-older-people-events-like-world-pride-can-be-isolating-we-need-to-better-understand-how-to-support-them-200533" target="_blank" rel="noopener">The Conversation</a>.

Caring

Support is the best medicine

Sharing your experience and talking with others when ill can be very good for your wellbeing. Here’s why support groups are great. Good friends may help your life last longer as they’ll boost your self-esteem, offer companionship and provide support when you need it. A study by the Centre for Ageing Studies at Flinders University backed this up by following 1500 older Aussies for 10 years and found that those who had a large network of friends outlived those with fewer friends by 22 per cent. When you know you can count on someone to help or provide support when you most need it, it can make the world of difference. However, sometimes people may not live near close friends or have found it difficult to develop a strong community group around them. When a person becomes ill, a good network can be the best medicine for helping to keep a person’s spirits up, so joining a support group could be the perfect solution. Another study, completed in 2005 and published in health journal Cancer, found that out of the 61 women who had advanced ovarian cancer those with support networks had much lower levels of a protein linked with more aggressive types of cancer. Women who didn’t have as much social support around them had levels of the protein that were a whopping 70 per cent higher! Support groups can bring people together who are facing similar issues, ranging from major life changes to illness. Many people join support groups because sharing experiences with people who are going through the same battles can be incredibly helpful and make a person feel like they’re not alone. Well-known Australian cancer survivor, Dr Ian Gawler, who was diagnosed with bone cancer, had his right leg amputated and then had to battle the disease again later that same year, believes having a positive and practical attitude can help in many ways when battling disease. According to a 2005 study by The Cancer Council, there are health benefits associated with being part of a health support group. These include: improvements in coping and adaptation, reductions in psychological stress, enhanced self-esteem and even positive effects on immunological response. Just ask Terri-Ann Carter, a Queenslander who underwent surgery and chemotherapy for a lump on her neck. She started an online support group called Gladstone Cancer Friends as a way to cope with the isolation and stress of going through cancer treatment. For cancer sufferers, two big fears are one of relapse and social isolation. Whether online or in person, a support group can help a person cope with these two alienating factors. When it comes to your health, nothing should be taken for granted. Together with surrounding yourself with the love and support of family, friends or new acquaintances from a support group, it’s always worth getting good health insurance. How to find a support group: Ask your doctor or health care provider. They may be able to point you in the right direction of a support group near you. Go online. There are many over-60s who live in rural or regional areas, so more people are turning to the internet to connect with others for support and advice. Social media sites, such as Facebook, have become very popular for people to comfortably share their stories and experience in an open and supportive forum. Get in touch with local centres. Look to your local community halls, libraries and even supermarket notice boards for possible support groups in your area. Look to state or national bodies. Organisations for a particular illness or issue usually have a directory of the support groups in various local communities for people to be redirected to. Take a look and find one that’s close to you. Can’t find one? Start your own. If there’s no support group near you, why not start your own? Look to start an online group via Facebook or post announcements on a board in your local medical centre or hospital to spread the word. Image: Getty

Caring

Wave of support for Dr Charlie Teo

Renowned brain surgeon Dr Charlie Teo has received an outpouring of support from doctors overseas calling for his current restrictions on surgeries to be overturned. Dr Charlie Teo is not allowed to conduct any surgeries in Australia without written approval from a fellow surgeon after the Medical Council of NSW received three complaints about him. This has led to the 64-year-old coming out and saying to 2GB radio host Chris Smith that he would even perform surgeries for free in public hospitals, because he has “had enough” of the ban from “jealous colleagues”. “It's gang warfare. It's purely based on professional jealousy. Even a governing body has said that I'm a competent surgeon,” he said to Smith on air. He said that there have been multiple instances in which his receptionist would break down crying when people would beg for him to perform their surgery. “The bottom line is, it's a pretty desperate situation, it's sad, it's wrong,” Dr Teo continued. “It all started from nameless, faceless, cowardly people who went to the media, made allegations and made up stories about me to try and destroy my reputation. “If I'm as bad as surgeons say I am, if I'm offering people false hope and false promises, come out and say it... and put a face to the allegations.” His comments come as six top-performing doctors across the world wrote to the Medical Council of NSW calling for the ban to be overturned. Professor Giovanni Broggi, who worked for more than 40 years at the Neurological Institute Carlo Besta in Milan, said that Dr Teo’s willingness to perform risky operations and successfully is important to people and their families. “Given his excellent clinical results and great surgical skills in treating brain tumours, Professor Teo often accepts to operate on very complex cases,” Professor Broggi wrote. “This attitude, coupled with his ability to truly share the patient’s point of view, is what allowed him to save many patients. “Although he could not save the life of patients affected by malignant brain tumours, such as Glioblastomas, the truth is that in most of the cases he was able to significantly prolong patients’ survival and to provide a good post-operative quality of life.” Professor Paul Gardner from the Department of Neurological Surgery at the University of Pittsburgh Medical Centre said that Dr Teo’s emotional investment in each patient is what drives him to ensure he’s doing the best he can. “All of us who manage the most complex and dangerous cranial tumours face the constant risk and fear of devastating complications,” Professor Gardner wrote. “Indeed, the only way to avoid these in such cases is to never operate. “It is clear, however, based on the medical literature, that many of these disease have significantly better prognosis and outcome if a more radical removal can be performed. “It is exactly this tightrope that Prof Teo is willing and able to walk every day. “Any of us who attempt to do so will occasionally have devastating complications. This is the nature of our business.” “The emotional investment this requires cannot be overstated. I have seen Prof Teo invest this in every one of his patients I have seen treated and I have seen the impact on him when there is even a minor complication. “There is no question in my mind that he is offering every patient the highest level of care available in the world.” Stanford Medicines Associate Professor of Neurosurgery Robert Dodd also addressed the NSW Medical Council, calling for his colleague to be given permission to perform surgeries again. “I hope you are able to navigate through this investigation and find direction to see that Professor Teo is indeed a good and passionate physician, a master surgeon, and an Australian treasure,” he wrote. Dr Teo already had a name for himself in Australia, but it was when Amelia "Milli" Lucas, a 14-year-old from Perth who crowdfunded $170,000 to afford Dr Teo's services that he gained worldwide attention. He flew across the country to Sydney to perform Milli’s operation and successfully removed 98 percent of her life-threatening brain tumour with the experimental surgery. She was hailed Dr Teo's "miracle girl". Images: Facebook

Caring

"If we stop communicating, Putin wins. Propaganda wins": how a Norwegian organisation is supporting Russian protest art

As an international student at the Bolshoi Ballet Academy in Moscow in 2012, I remember studying Rekviem (requiem) by Russian poet <a href="https://www.poetryfoundation.org/poets/anna-akhmatova">Anna Ahkmatova</a>, an elegy she penned in secret as a tribute to the countless victims of Stalin’s murderous purges. Akhmatova’s writing revived the atrocities, delivering their darkness into the light. Her words spoke of constant fear permeating lives; of distrust, anxiety and betrayal; of the secret police arriving to drag you or your family away. To avoid detection and retribution, Ahkmatova whispered the poem to her friends who committed it to memory. She burned the incriminating scraps of paper. In the first four-and-a-half months following Putin’s attack against Ukraine, over 13,000 anti-war protesters <a href="https://ovdinfo.org/articles/2022/03/07/cracked-heads-and-tasers-results-march-6th-anti-war-protests">were detained</a> in Russia. Some estimates are that <a href="https://meduza.io/feature/2022/05/07/skolko-lyudey-uehalo-iz-rossii-iz-za-voyny-oni-uzhe-nikogda-ne-vernutsya-mozhno-li-eto-schitat-ocherednoy-volnoy-emigratsii">hundreds of thousands</a> fled Russia in early 2022, among them thousands of artists who no longer felt safe in the climate of increasing censorship. Some of these artists have found themselves in Kirkenes, a small Norwegian town 15 kilometres from the Russian border. <h2>Russia’s protest art</h2> Russian and Soviet artists have a long history of art as protest. The poem <a href="https://poets.org/poem/stalin-epigram">Stalin’s Epigram</a> (1933) authored by <a href="https://www.poetryfoundation.org/poets/osip-mandelstam">Osip Mandelstam</a> depicted Stalin as a gleeful killer. Authorities imprisoned and tortured Mandelstam, then deported the poet to a remote village near the Ural Mountains. After returning from exile, he persisted writing about Stalin until he was sent to a labour camp in Siberia, where he died in 1938 at the age of 47. Under the comparatively liberal rule of Stalin’s successor <a href="https://www.jstor.org/stable/131346?seq=1#metadata_info_tab_contents">Nikita Khrushchev</a> from 1953, the Soviet Union began to enjoy previously unimagined freedoms. Protest art reflected these newfound liberties, becoming increasingly provocative and experimental. Many famous art movements surfaced during this period, including <a href="https://www.moscowart.net/art.html?id=SotsArt">Sots Art</a> — a fusion between Soviet and Pop Art — as Russian artists tested the boundaries, exposing the grim realities and unhappiness of life under Stalin’s regime. In 1962, the legendary composer Shostakovich set his <a href="https://theconversation.com/decoding-the-music-masterpieces-shostakovichs-babi-yar-82819">13th symphony</a> to a series of poems by his contemporary, Yevgeny Yevtushenko. One of these poems was Babi Yar, which criticised the Soviet government for concealing the <a href="https://www.smithsonianmag.com/history/babi-yar-ukraine-massacre-holocaust-180979687/">massacre of 33,371 Jews</a> in a mass grave outside Kyiv. In contemporary Russia, <a href="https://www.nytimes.com/2022/05/10/world/europe/pussy-riot-russia-escape.html">Pussy Riot</a> came to the attention of the world in 2012 when members stepped behind the altar in Moscow’s golden-domed Christ the Saviour Cathedral wearing neon-coloured balaclavas to deliver a “punk rock prayer”. Their voices echoed off the cavernous, hand-painted ceilings, raging against Putin’s affiliation with the Orthodox church and the homophobic, anti-feminist policies that followed. They were sentenced to two years imprisonment. Today, <a href="https://artreview.com/amidst-a-crackdown-russia-anti-war-artists-and-activists-try-to-reclaim-the-streets/">pictures from Russia</a> reveal anonymous anti-war graffiti on the sides of buildings, “no war” chiselled into a frozen river, and yellow and blue chrysanthemums and tulips left at the feet of Soviet war memorials. <h2>Cross-border collaborations</h2> <a href="https://www.pikene.no/">Pikene på Broen</a> (girls on the bridge) is an arts collective based in Kirkenes. They have spent the past 25 years curating art projects to promote cross-cultural collaboration and tackle political problems in the borderland region. Pikene på Broen is host to the the annual art festival <a href="https://en.wikipedia.org/wiki/Barents_Sea">Barents</a> Spektakel (spectacle), an international artist residency including Russian, Norwegian and Finnish creatives, the gallery and project space Terminal B in Kirkenes town, and the debate series Transborder Café. The venue has become a hub for open discussions relating to current political and cultural issues, drawing contributions from artists, musicians, writers, politicians and researchers. Evgeny Goman, an independent theatre director from Murmansk, Russia – about 200 kilometres from Kirkenes – has been collaborating with Pikene på Broen for over 10 years. After moving to Norway in early 2022, Pikene på Broen worked with Goman to organise Kvartirnik (from the word kvartira, meaning apartment), an online talk group for Russian and Norwegian artists to exchange ideas. Following Putin’s attack on Ukraine, Kvartirnik shifted to an underground movement for dissident artists. Ironically, the name Kvartirnik derives from the clandestine concerts arranged <a href="https://www.ciee.org/go-abroad/college-study-abroad/blog/ciee-kvartirnik-understanding-through-music">in people’s apartments</a> during the Soviet Era when musicians were banned from performing in public. <a href="http://deadrevolution.tilda.ws/?fbclid=IwAR2PcaqY7VdLtS1zYUu4JCbD6F36KZ8JKv_FEIYsNeSTE4aKokhV7YpITas">Party of the Dead</a> is one of several Russian protest art groups who participated in Kvartirnik. Pictures from the snow-decked Piskaryovskoye Cemetery in Saint Petersburg reveal members dressed as skeletons, holding placards reading: “are there not enough corpses?”. I spoke with Goman about the art coming out of Kvartirnik today. “In peaceful times, art is more about entertaining,” he says. "But in war and conflict, art is more important because it’s the language we use to express our pain. And through metaphors and symbolism, it allows us to speak about things that are censored." <h2>Countering propaganda</h2> Kvartirnik collaborators in Murmansk have also produced and distributed <a href="https://en.wikipedia.org/wiki/Samizdat">Samizdat</a> (self-publishing), an anonymous newsletter containing art suppressed by the state. “We have to be really smart now about how we do things in Russia,” Goman says. “Subtle.” Goman is pessimistic about Russia’s future. But he believes the key to moving forward is keeping communication open. He tells me the West’s decision to <a href="https://www.theatlantic.com/ideas/archive/2022/03/right-way-cancel-russia/627115/">ban Russian culture</a> has backfired on their plan to pressure Putin into ending the war against Ukraine. Instead, he says, the divide is steadily increasing, leaving dissident artists isolated inside a country operating on fear and propaganda, furthering Putin’s agenda. “Putin wants us to not affect Russian minds. And that’s why we have to keep the dialogue going,” he says of the importance of cross-border collaborations like those he has undertaken in Kirkenes. "If we stop communicating, Putin wins. Propaganda wins." Image credits: Getty Images This article originally appeared on <a href="https://theconversation.com/if-we-stop-communicating-putin-wins-propaganda-wins-how-a-norwegian-organisation-is-supporting-russian-protest-art-186911" target="_blank" rel="noopener">The Conversation</a>.

Art

"Let's dance!": Women let loose in support of partying PM

Women all over the world are sharing their support for Finland's partying Prime Minister by sharing videos of themselves dancing online. The Finnish PM, 36-year-old Sanna Marin, made headlines in recent weeks after leaked footage of her dancing at an event with celebrity friends went viral. The videos, which were taken as she danced with friends in two private apartments and then at a nightclub in Helsinki, have led to her being criticised and forced to denounce the use of drugs on her night out. She also was questioned about her alcohol intake on the night in question, and while she denies waking with a hangover or drinking to excess, she said she has as much right to a night out as anyone else, saying, "Everyone needs a fun and relaxed evening out." As the controversy around her party night continues, professional women around the world have been dancing in solidarity, as they stand with the Finnish PM and her right to a night off the top job. A clip shared by the Danish magazine Alt on Instagram showed several women celebrating, with some clubbing or at home to show their support for the Prime Minister. The magazine said they had "leaked" their own dancing videos online, in reference to the video of the prime minister, which was leaked last week. <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-permalink="https://www.instagram.com/reel/ChcBl-LqcRH/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/reel/ChcBl-LqcRH/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by ALT for damerne (@altfordamerne)</a> </div> </blockquote> "SYMPATHY LEAK! In solidarity with Finland's Prime Minister Sanna Marin (whose party video has been leaked, so that certain types are now questioning what one can allow themselves to do as Prime Minister)," the post's caption read. "We at ALT for the ladies' editorial office have emptied the camera roll of clips that should never have seen the light of day." "And no, you don't become a worse prime minister, director, school teacher...put in a job yourself...by firing it up on the dance floor at the weekend." Others have been posting messages of support with the hashtags #solidaritywithsanna and #istandwithsanna. Comments of support have flooded online spaces, with one woman saying, "I say ALL women across the world need to post videos of themselves dancing and partying with friends!! Let’s blow up the internet women!!" Another said, "Let’s show those with a “crotchety old men mentality” that they can stick it where the sun don’t shine!!!" Image credits: Instagram / Getty Images

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